Listeners:
Top listeners:
00:00
00:00
volume_up
chevron_left
-
THERMAL Radio Our Tracks Are Hot
-
Life Improvement Radio Enhancing Lives Daily
-
Untethered Radio (18+) Mature Content For Immature Audiences
-
Pharmacy Radio Network Exploring The Pharmacy Industry
-
CareONE Radio Tomorrow's Healthcare Information Today
-
6Pack Sports Radio Sports. Beer. Dadbods.
-
Entrepreneur Radio Business News Daily
-
Charitable Works Telling Stories That Make A Difference
-
Live News Updates Top News Headlines Daily
The Voice Of The Rare: Building A Community Through Shared Stories With Rebecca Stewart & Nicola Miller
AD
-
The Voice Of The Rare: Building A Community Through Shared Stories With Rebecca Stewart & Nicola Miller #HeliumRadio
In this episode, Tony Martignetti talks with sisters Rebecca Stewart and Nicola Miller as they share their transformative journey and the impactful work they have undertaken in the rare disease community, catalyzed by Nicola’s son Edison’s diagnosis with xeroderma pigmentosum. They delve into the challenges of navigating the rare disease landscape, recounting their pivotal roles in founding Action for XP and launching Rare Revolution Magazine. Their story reflects resilience, dedication, and the profound impact of community-driven initiatives in the face of adversity.
Love the show? Subscribe, rate, review, and share! https://www.ipurposepartners.com/podcast
AD